{"id":222905,"date":"2023-11-18T16:03:38","date_gmt":"2023-11-18T15:03:38","guid":{"rendered":"https:\/\/tuzlainfo.ba\/?p=222905"},"modified":"2023-11-18T09:37:53","modified_gmt":"2023-11-18T08:37:53","slug":"stigao-lijek-za-djecu-oboljelu-od-cisticne-fibroze-terapiju-ce-primiti-djeca-u-tri-klinicka-centra","status":"publish","type":"post","link":"https:\/\/tuzlainfo.ba\/index.php\/bosna-i-hercegovina\/item\/222905-stigao-lijek-za-djecu-oboljelu-od-cisticne-fibroze-terapiju-ce-primiti-djeca-u-tri-klinicka-centra\/","title":{"rendered":"Stigao lijek za djecu oboljelu od cisti\u010dne fibroze, terapiju \u0107e primiti djeca u tri klini\u010dka centra"},"content":{"rendered":"

Dugo o\u010dekivani lijek kaftrio, koji zna\u010di spas za oboljelu djecu i omladinu od rijetke bolesti – cisti\u010dne fibroze, stigao je u Federaciju BiH. Kako nam je kazala predsjednica Udru\u017eenja oboljelih od cisti\u010dne fibroze Elvira Muhi\u0107, lijek \u0107e idu\u0107e sedmice biti dostavljen klini\u010dkim centrima u Sarajevu, Tuzli i Mostaru.<\/p>\n

Tako \u0107e od ukupno 28 oboljelih od cisti\u010dne fibroze prvu terapiju ovog lijeka dobiti prioritetno prva grupa od 18 pacijenata, pi\u0161e Oslobo\u0111enje<\/strong><\/a>.<\/p>\n

– Oni su kandidati za lijek po\u0161to postoje dva preduslova da bi dobili terapiju. To je, prije svega, da imaju specifi\u010dnu mutaciju delta SP108 i da imaju \u0161est godina i vi\u0161e, tako da je trenutno 18 pacijenata za terapiju, ka\u017ee za Oslobo\u0111enje Muhi\u0107, nagla\u0161avaju\u0107i da je ova koli\u010dina koja je stigla u Sarajevo dovoljna za tromjese\u010dnu terapiju.<\/p>\n

Nakon \u0161to su proteklih dana zavr\u0161ene tenderska i pravna procedura, kazuje na\u0161a sagovornica, lijek kaftrio je stigao na Aerodrom Sarajevo, pro\u0161ao carinu i do\u0161ao je kod nas. Sljede\u0107a procedura je narud\u017eba za klini\u010dke centre i implementacija, odnosno distribucija pacijentima.<\/p>\n

Godi\u0161nja terapija lijekom kaftrio za jednog pacijenta ko\u0161ta 250.000 eura. Vlada FBiH je izdvojila dva miliona KM.<\/p>\n

– Ljekari u klini\u010dkim centrima treba da obrade pacijente sa medicinskog aspekta i da propi\u0161u terapiju. To o\u010dekujemo po\u010detkom idu\u0107e sedmice. Svi ne\u0107e odjednom dobiti terapiju zato \u0161to je komplikovana procedura. Neka djeca \u0107e se morati hospitalizovati, neka ne\u0107e, ali to ostavljamo ljekarima da naprave raspored, ka\u017ee Muhi\u0107.<\/p>\n

Poja\u0161njava da ostali oboljeli od cisti\u010dne fibroze trebaju \u010dekati da napune \u0161est godina, kako bi mogli po\u010deti terapiju. Ova prva grupa oboljelih su prioriteti.<\/p>\n

Iz Udru\u017eenja oboljelih od cisti\u010dne fibroze podsje\u0107aju da su dva miliona vanredno obezbije\u0111ena iz federalnog bud\u017eeta za tri mjeseca.<\/p>\n

– Ono \u0161to je nama vrlo va\u017eno jeste da se radi dalje, da u bud\u017eetu FBiH bude uvr\u0161teno finansiranje nabavke lijeka kaftrio za cisti\u010dnu fibrozu, jer ne smije se obustaviti terapija. Dakle, kada ga djeca po\u010dnu primati, svaki nedostatak lijeka predstavlja \u0161ok za organizam, tako da se ne smijemo dovesti u situaciju da lijeka ne bude, ustvrdila je Muhi\u0107, dodaju\u0107i da je izuzetno va\u017eno njegovo dalje naru\u010divanje, ali se mora izdvojiti novac iz bud\u017eeta 2024. za narednu godinu.<\/p>\n

Iz Udru\u017eenja isti\u010du da su zahvaljuju\u0107i razumijevanju i brzoj reakciji Vlade FBiH i Ministarstva zdravstva, interventnim uvozom obezbije\u0111ene koli\u010dine lijeka za naredna tri mjeseca svim pacijentima koji u ovom trenutku ostvaruju medicinske uslove za primjenu modularne terapije. Zbog nemogu\u0107nosti lije\u010denja djece, roditelji su ljetos i protestovali.<\/p>\n","protected":false},"excerpt":{"rendered":"

Dugo o\u010dekivani lijek kaftrio, koji zna\u010di spas za oboljelu djecu i omladinu od rijetke bolesti – cisti\u010dne fibroze, stigao je u Federaciju BiH. Kako nam je kazala predsjednica Udru\u017eenja oboljelih od cisti\u010dne fibroze Elvira Muhi\u0107, lijek \u0107e idu\u0107e sedmice biti dostavljen klini\u010dkim centrima u Sarajevu, Tuzli i Mostaru. Tako \u0107e od ukupno 28 oboljelih od […]<\/p>\n","protected":false},"author":2,"featured_media":87293,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[291,304],"tags":[7360,2873],"class_list":["post-222905","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-bosna-i-hercegovina","category-istaknuto","tag-cisticna-fibroza","tag-lijek"],"yoast_head":"\nStigao lijek za djecu oboljelu od cisti\u010dne fibroze, terapiju \u0107e primiti djeca u tri klini\u010dka centra<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/tuzlainfo.ba\/index.php\/bosna-i-hercegovina\/item\/222905-stigao-lijek-za-djecu-oboljelu-od-cisticne-fibroze-terapiju-ce-primiti-djeca-u-tri-klinicka-centra\/\" \/>\n<meta property=\"og:locale\" content=\"bs_BA\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Stigao lijek za djecu oboljelu od cisti\u010dne fibroze, terapiju \u0107e primiti djeca u tri klini\u010dka centra\" \/>\n<meta property=\"og:description\" content=\"Dugo o\u010dekivani lijek kaftrio, koji zna\u010di spas za oboljelu djecu i omladinu od rijetke bolesti – cisti\u010dne fibroze, stigao je u Federaciju BiH. Kako nam je kazala predsjednica Udru\u017eenja oboljelih od cisti\u010dne fibroze Elvira Muhi\u0107, lijek \u0107e idu\u0107e sedmice biti dostavljen klini\u010dkim centrima u Sarajevu, Tuzli i Mostaru. 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Kako nam je kazala predsjednica Udru\u017eenja oboljelih od cisti\u010dne fibroze Elvira Muhi\u0107, lijek \u0107e idu\u0107e sedmice biti dostavljen klini\u010dkim centrima u Sarajevu, Tuzli i Mostaru. 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